I ASKED FOR HELP AND FOUND MY TRIBE.

This is not an easy thing for me to say, but here goes: My name is Suzy, and I need…ugh…I need…gulp…okay here goes…I NEED HELP!

Wow, that was tough, and yet it’s true. I am recovering from back-to-back reconstructive foot surgeries, and guess what I learned? I can’t do it alone. I need help. But sometimes it feels easier to do it the hard way than ask for help. Me, relinquish control of every aspect of my routine? Me, admit that I can’t do it all? Me, watch someone else do it the wrong way?

When you live over a decade with an illness, you learn to adapt. You learn to modify your ways in order to preserve your independence…and your self-esteem. Every time you have to ask for help, like opening a bottle of pain reliever medication so that you can function a little better and not have to ask for so much assistance, it’s a reminder that you have limitations while others don’t.

I don’t think the hesitance to ask for help is solely tied to those with illness or injury, though. I think far too many of us fall victim to this mentality. In this day and age of the multi-tasking, overachieving, constantly-striving-for-self-growth way of life, to admit we can’t do it all feels like defeat. Think about your workplace. A leader is only as good as the people she leads. A great leader has great employees and knows how to delegate. She has help.

Except in real life, most of us don’t have personal assistants to help us manage our lives. We can’t tell someone to watch our kids while we go to the doctor or bring us soup when we are sick. We have to ask. We have to interrupt someone else’s busy routine, one that’s probably just as full as ours.

                  No wonder we are so exhausted.

                  No wonder we feel busy and overwhelmed.

                  No wonder our relationships struggle and we feel alone.

                  No wonder we don’t feel a sense of community. We don’t offer a sense of community.

What are we so afraid of? Rejection? Move on and ask another person. Disappointment? Again, move on and find someone else. Being an inconvenience? Put yourself in the other person’s shoes. Would you feel inconvenienced? Hopefully your answer is no. Are you afraid of strengthening friendships? Having someone by your side to make life a little easier? Sharing in life’s troubles?

You see, we have so much to gain when we learn to ask for help and very little to lose (except for some maybe their pride, in which case I would suggest you need to be humbled now and then).

I’m not suggesting we make every problem someone else’s problem. There is strength and satisfaction to be found in perseverance. But when life seems to be throwing a dozen lemons at us (or in my case, a broken garbage disposal, broken dryer, backed up sewage pipes, broken garage door spring and a totally busted “Franken-foot”), and we only have two hands, why not ask for help catching the other lemons rather than trying to grow ten more hands (and maybe even an extra foot)?

So back to my foot surgeries: I not only accepted but I asked for help. I accepted offers for meals. I asked to borrow a knee scooter. I asked for healing prayers and emotional guidance. I asked for help getting kids to and from school. I asked for rides to doctor appointments and play dates. I asked for help when my daughter got herself stuck inside box spring mattress. Imagine making that phone call. I even asked one of my closest friends to scrub my toilet. (For the record, she is a neat freak whose love language I am pretty sure is cleaning toilets.)

And guess what? Not everyone helped, but a lot of them did, even with the toilets. They caught my lemons! It’s my hope that I can repay them with kindness and generosity. No, I take that back. I won’t repay them. These friends of mine, they don’t keep tabs. But maybe, hopefully, I can be there for them, and others, when the need for help arises.

I ASKED FOR HELP AND FOUND MY TRIBE.

This is not an easy thing for me to say, but here goes: My name is Suzy, and I need…ugh…I need…gulp…okay here goes…I NEED HELP!

Wow, that was tough, and yet it’s true. I am recovering from back-to-back reconstructive foot surgeries, and guess what I learned? I can’t do it alone. I need help. But sometimes it feels easier to do it the hard way than ask for help. Me, relinquish control of every aspect of my routine? Me, admit that I can’t do it all? Me, watch someone else do it the wrong way?

When you live over a decade with an illness, you learn to adapt. You learn to modify your ways in order to preserve your independence…and your self-esteem. Every time you have to ask for help, like opening a bottle of pain reliever medication so that you can function a little better and not have to ask for so much assistance, it’s a reminder that you have limitations while others don’t.

I don’t think the hesitance to ask for help is solely tied to those with illness or injury, though. I think far too many of us fall victim to this mentality. In this day and age of the multi-tasking, overachieving, constantly-striving-for-self-growth way of life, to admit we can’t do it all feels like defeat. Think about your workplace. A leader is only as good as the people she leads. A great leader has great employees and knows how to delegate. She has help.

Except in real life, most of us don’t have personal assistants to help us manage our lives. We can’t tell someone to watch our kids while we go to the doctor or bring us soup when we are sick. We have to ask. We have to interrupt someone else’s busy routine, one that’s probably just as full as ours.

                  No wonder we are so exhausted.

                  No wonder we feel busy and overwhelmed.

                  No wonder our relationships struggle and we feel alone.

                  No wonder we don’t feel a sense of community. We don’t offer a sense of community.

What are we so afraid of? Rejection? Move on and ask another person. Disappointment? Again, move on and find someone else. Being an inconvenience? Put yourself in the other person’s shoes. Would you feel inconvenienced? Hopefully your answer is no. Are you afraid of strengthening friendships? Having someone by your side to make life a little easier? Sharing in life’s troubles?

You see, we have so much to gain when we learn to ask for help and very little to lose (except for some maybe their pride, in which case I would suggest you need to be humbled now and then).

I’m not suggesting we make every problem someone else’s problem. There is strength and satisfaction to be found in perseverance. But when life seems to be throwing a dozen lemons at us (or in my case, a broken garbage disposal, broken dryer, backed up sewage pipes, broken garage door spring and a totally busted “Franken-foot”), and we only have two hands, why not ask for help catching the other lemons rather than trying to grow ten more hands (and maybe even an extra foot)?

So back to my foot surgeries: I not only accepted but I asked for help. I accepted offers for meals. I asked to borrow a knee scooter. I asked for healing prayers and emotional guidance. I asked for help getting kids to and from school. I asked for rides to doctor appointments and play dates. I asked for help when my daughter got herself stuck inside box spring mattress. Imagine making that phone call. I even asked one of my closest friends to scrub my toilet. (For the record, she is a neat freak whose love language I am pretty sure is cleaning toilets.)

And guess what? Not everyone helped, but a lot of them did, even with the toilets. They caught my lemons! It’s my hope that I can repay them with kindness and generosity. No, I take that back. I won’t repay them. These friends of mine, they don’t keep tabs. But maybe, hopefully, I can be there for them, and others, when the need for help arises.

THE UNEXPECTED GIFTS THAT AUTOIMMUNE DISEASE BROUGHT TO ME.

The other day I cried while loading the dishwasher.

You are probably thinking, I cry when I have to clean the toilets. It’s called housework, and we all have to do it, so get over your little pitty party and put on your big girl underpants.

Fair enough. But there was a reason I was crying, and it had nothing to do with the actual task at hand and everything to do with what my life had become at that moment. Bent over on a knee scooter, recovering from a second reconstructive foot surgery in four months, unable to walk and losing strength in my arms and hands, I was stuck. The wheel of the scooter was jammed between the dirty tile floor and the open door to the dishwasher, while the bottom rack held a heavy ceramic crock pot which made the rack impossible to slide back into the dishwasher. I couldn’t even close the damn dishwasher without my eight-year-old’s help.

At thirty-nine years old, I felt totally helpless and old and…guilty.

My family didn’t ask for this.

My husband didn’t ask to be the sole provider while driving kids to school, giving them baths, cleaning the house and picking up groceries. He’s like a single parent except he has to pay my medical bills, which we all know aren’t cheap. He didn’t ask to give up vacations because I can’t hike in Oregon and can’t wear flip flops in Carlsbad. He didn’t ask to forego fancy anniversary dinners because I have severe food sensitivities and can only wear sneakers, anyway. No, he didn’t ask for this life, and he couldn’t have imagined it fifteen years ago when he said his vows.

My kids don’t deserve a mom who can’t kick a soccer ball or camp out on the living room floor. They shouldn’t have to hear all the reasons why I can’t take them to the museum or the trampoline park. They deserve better than a mom who screams in agony and frustration when they accidentally hit her elbow with a book. Yeah, a book.

So what does one do when faced with this guilt? I’ve found a few things that help.

1.     Remember it’s not your fault. I repeat, it’s not your fault. You didn’t intentionally make yourself sick. In fact I’d bet a million bucks (or maybe a year’s worth of medical bills) that there isn’t much you wouldn’t do to make yourself well again.

2.     Know that you are deserving of love regardless of your physical condition. Do you love your parents or grandparents any less when they need help opening a jar of sugar-free jam, get cataracts or need a hip replacement? (Note that you are allowed to dislike the sugar-free jam. Artificial sweeteners are crap.)

3.     Put yourself in their shoes. I’ll be honest, I struggle with this one. The kids are easy. I grew up with a mother afflicted by RA. I never resented her or felt slighted. But my husband…well, I never thought of him as having a caretaker’s mentality, and that’s what he has become. Most men are physical by nature, and my man is no exception. They are drawn to the physicality of their mate, and some days my physicality looks like I just walked off the set of The Walking Dead. All I can do is try to fulfill his needs as much as possible and show my appreciation for his loyalty and care of our family.

4.     Think of everything your loved ones have gained. Say what??!! Sounds crazy but it’s true, there are things to be gained. I believe my children are learning empathy and compassion. When my son has to refill my glass of water and my daughter has to retrieve ice packs, they learn to put others’ needs before theirs. Anyone with small children can agree that is not instinctual for most kids.

5.     Embrace the times when you must slow down. My limitations have forced the family to slow down at times. Maybe we didn’t travel the way we had planned this past summer, but we rented a cabin a couple of hours away and were able to unwind. The kids got to play in the creek and get muddy. We went fishing and listened to Pearl Jam. (Typical fishing music, right?) We read books and swung on wooden swings. I’m pretty sure we made a few good memories along the way.

It’s not an easy journey for any of us, but with the right perspective, we can live enjoyable and fulfilling lives with our loved ones.

AUTOIMMUNITY AND THE MAGIC BEANS.

Autoimmunity. It’s the (often) invisible disease that will turn your life upside down and is sure to spark more debate at a dinner party than any presidential election or bathroom segregation. Everyone seems to have an opinion these days.

Chronic fatigue syndrome? Poor diet. Adrenal fatigue? You need to exercise more. No, don’t exercise. Sleep with a grounding pillow. Fibromyalgia? Try yoga. Acupuncture. Arthritis? Cut out gluten and dairy. Go Paleo. Go alkaline. Try some CBD oil. Hypothyroid? You need more iodine. Less iodine. No, you need to remove that root canal. Did I mention I have some magic beans to sell you?

Surely there must be a reason why we’ve seen such a spike in autoimmunity. It’s all caused by leaky gut. No, it’s parasites. Epstein Barr Virus. Vaccines. Heavy metals. Nope, it’s just mental.

Feel free to roll your eyes now if you haven’t already. Ugh, I’ve heard it all. And I’ve said it all at some point in my sixteen years since I was first diagnosed with an autoimmune disease.

I’m not here to tell you why we suffer. I don’t know the root cause, and I don’t know the cure, although I’m working to find mine.

I do know what it feels like to suffer, though. At the age of 23 I was diagnosed with RA. I have since been diagnosed with hypothyroid and adrenal insufficiency. I’ve had high uric acid (no, I don’t drink beer or alcohol of any sort, thanks for asking). I’ve suffered through fibromyalgia pain and all sorts of other weird symptoms that would probably have an autoimmune diagnosis if I felt like going to a doctor. And it sucks.

But I’m not looking for sympathy.

You see, before I was diagnosed with RA, I never thought I would get it, despite the family history on my mother’s side. I was my father’s daughter in so many ways: athletic, always on the go, a busy body. RA just didn’t fit in with my lifestyle.

And then I was diagnosed and figured there must be a reason. Everything happens for a reason, right? Right?

Days when the air outside is damp, the bags under my eyes are more pronounced courtesy of a 2:00am wakeup call from my daughter, my knees hurt too much for a bath but my feet are too sore for a shower, and the dog is eating the sofa …it’s not always easy to appreciate my suffering. But maybe tomorrow I’ll feel better and find someone who is living my yesterday. And I’ll be able to empathize, lend an ear or a helping, albeit slightly swollen and tender, hand. Because you never know who else is suffering silently.

And that is what it is all about: making the best of this journey, bringing awareness, picking up friends- and strangers- along the way. I hope you’ll join me as I share my not-so-invisible autoimmune life.